Terms & Privacy

Privacy Information

Stored Information

Of the information we learn about you from your visit to Johns Hopkins Medicine Web sites, we store the following: the IP address from which you access the Internet, the date and time, the Internet address of the Web site from which you linked directly to our site, the name of the file or the words you searched, and the browser used to access our site. This information is used to measure the number of visitors to the various sections of our site and identify system performance or problem areas. We also use this information to help us improve features of the site and to make the site more useful.

Personally Provided Information

If you choose to provide us with personal information by sending an email, or by filling out a form with your personal information and submitting it through our Web site, we use that information to respond to your message and to help us provide you with information or material that you request. We do not give, share, sell, or transfer any personal information to a third party unless required by law.

Links to Other Sites

Some Johns Hopkins Medicine Web sites provide links to other internet sites that provide health information. Once you link to another site, you are subject to the privacy policy of the new site.

For patient privacy information, visit the Johns Hopkins HIPAA Web Site.


This Johns Hopkins Medicine Web site should be used solely for discussing health-related information related to cystic fibrosis. No health and health-related information contained within the site should be used as a substitute for a visit with a health care professional. Your health care provider should be consulted regarding matters concerning the medical condition, treatment and needs of you and your family.

This website shall not be used for political, racial, sexual, harassing or other such purposes. Johns Hopkins reserves the right to monitor the Member Families section of the site and to remove at any time messages and other material that appear to be inappropriate. Johns Hopkins also reserves the right to terminate any person’s access to the Web site for inappropriate activities.

While Johns Hopkins will not disclose any of your health information on this Web site, any personal health information that you provide about yourself will be seen by others who have access to the Member Families section of the site. Johns Hopkins has no control over what other visitors to the site may do with your information. Please be aware most information transmitted over the Internet is not secure; thus, confidentiality cannot be guaranteed. Members of this Web site have a responsibility to notify Johns Hopkins if their Web address changes.

Please note that some pages within this Web site, for the convenience of users, are linked to Web sites not managed by Johns Hopkins Medicine. Neither The Johns Hopkins University nor The Johns Hopkins Health System review, control or take responsibility for the content of these other Web sites. Links from this Web site to Web sites not managed by Johns Hopkins Medicine do not imply endorsement or credibility of the service, information or product offered through the linked sites.

Although every effort is made to ensure that the material within this Johns Hopkins Medicine Web site is accurate and timely, it is provided for the convenience of the Web site user and should not be considered official. Users of this Web site are advised to refer to and rely upon the official version of information when making significant decisions.