News & Events
Check out presentations from Johns Hopkins CF Center patient and family educational events.
Patient & Family Day / Educational Events
Living as an Adult with CF: A Commentary on Identity, Mental Health and the Future
Patient and Family Education Day
April 20, 2024
Tré LaRosa discusses living with cystic fibrosis
Update in Clinical Trials in CF – Focus on the New Era of Genetic Based Therapies
Patient and Family Education Day
April 20, 2024
Dr. Christopher Goss discusses the latest research in the development of therapeutics for cystic fibrosis
Partnership Enhancement Program: Sharing What Matters with the Care Team
Patient and Family Education Day
April 20, 2024
Karen von Berg discusses how to optimize patient and family experiences in Cystic Fibrosis Clinic
An Adult Perspective on Cystic Fibrosis
Patient and Family Education Day
November 12, 2022
Jeff Breslin provides his insights on living with cystic fibrosis
Below the Diaphragm: A 2022 Research Update on CF Reproductive Health
Patient and Family Education Day
November 12, 2022
Dr. Traci M. Kazmerski discusses male and female reproductive health for people with cystic fibrosis.
Beating the Odds: Cultivating Resilience in Your Life
Patient and Family Education Day
November 20, 2021
Chris MacLeod discusses living with cystic fibrosis and the value of resilience. He is the author of Beating the Odds.
CF Therapeutics: Great Strides & Future Directions
Patient and Family Education Day
November 20, 2021
Dr. Jennifer Taylor-Cousar discusses current and future cystic fibrosis therapeutics
CF Warrior Project
Patient and Family Education Day
November 7, 2020
Andy Lipman discusses living with cystic fibrosis and the creation the CF Warrior Project
CF Research: Now that We Have Modulators, What’s Next?
Patient and Family Education Day
November 7, 2020.
Dr. Patrick Flume presents the latest in cystic fibrosis research.
An Adult Perspective of Cystic Fibrosis
Family Education Day – November 23, 2019
Chad Riedy provides his perspective on living with cystic fibrosis and his advocacy for people with cystic fibrosis.